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Neurorehabilitation and Neural Repair
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Aspects of Caregiver Distress After Severe Head Injury

Joanna K. Semlyen

Academic Unit of Neurological Rehabilitation, Hunters Moor Regional Neurological Rehabilitation Centre, Hunters Road, Newcastle upon Tyne NE2 4NR

Sharon J. Summers

Academic Unit of Neurological Rehabilitation, Hunters Moor Regional Neurological Rehabilitation Centre, Hunters Road, Newcastle upon Tyne NE2 4NR

Michael P. Barnes

Academic Unit of Neurological Rehabilitation, Hunters Moor Regional Neurological Rehabilitation Centre, Hunters Road, Newcastle upon Tyne NE2 4NR

The caregivers of 22 severely head-injured individuals were interviewed at 6 and 12 months post injury to obtain information about the extent of their distress and to in vestigate the relationship between their distress and two aspects of burden: caregivers' perceptions of the head-injured person's problems and an objective assessment of func tional independence. Caregivers reported high levels of distress. The factors associated with caregiver distress included the number of perceived problems at 6 months post injury, the overall level of disability, and certain aspects of functional independence at both 6 and 12 months, particularly if the person required assistance with self-care and home-based tasks. Implications for rehabilitation of both the head-injured indi vidual and his or her caregivers are examined, especially with reference to issues sur rounding return to the community. Key Words: Caregivers—Head injury—Psycho logical distress—Functional outcome—Newcastle Independence Assessment Form (N1AF)—GHQ-28

Neurorehabilitation and Neural Repair, Vol. 12, No. 2, 53-59 (1998)
DOI: 10.1177/154596839801200202
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